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Active centers

SHAMAN study sites
Thank you for your interest in the SHAMAN study. Please fill out the form below to receive information about this study site.

1 BC Children's Hospital Vancouver Vancouver, British Columbia, CAN
2 UCSF Benioff Children’s Hospital Oakland Oakland, California, USA
3 Children’s Hospital Colorado Aurora, Colorado, USA
4 Ann & Robert H. Lurie Children’s Hospital of Chicago Chicago, Illinois, USA
5 Cincinnati Children’s Hospital Medical Center Cincinnati, Ohio, USA
6 Boston Children’s Hospital Boston, Massachussets, USA
7 Texas Medical Center Houston, Texas, USA
8 Nicklaus Children’s Hospital Miami, Florida, USA
9 Ruth Rappaport Children’s Hospital Haifa, Israel

CANADA

1 BC Children's Hospital Vancouver Vancouver, British Columbia, CAN

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References
  1. ClinicalTrials.gov. Interventional Study to Assess Efficacy and Safety of Velmanase Alfa in Patients With Alpha Mannosidosis (SHAMAN). Available at: https://clinicaltrials.gov/ct2/show/NCT04031066. Last accessed: January 21, 2020.
  2. ClinicalTrials.gov. Learn About Clinical Studies. Available at: https://clinicaltrials.gov/ct2/about-studies/learn. Last accessed: January 21, 2020.
  3. National Institutes of Health. NIH Clinical Research Trials and You. Available at: https://www.nih.gov/health-information/nih-clinical-research-trials-you/basics. Last accessed: January 21, 2020.
  4. Borgwardt L, Stensland HM, Olsen KJ, et al. Alpha-mannosidosis: correlation between phenotype, genotype and mutant MAN2B1 subcellular localisation. Orphanet J Rare Dis. 2015;10:70.
  5. European Medicines Agency. New enzyme replacement therapy to treat rare genetic disorder alpha-mannosidosis in children and adults. Available at: https://www.ema.europa.eu/en/news/new-enzyme-replacement-therapy-treat-rare-genetic-disorder-alpha-mannosidosis-children-adults. Last accessed: January 21, 2020.
  6. Chiesi. Clinical Trial Transparency and Data Sharing. Available at: https://www.chiesi.com/en/research-and-development/clinical-trial-transparency-and-data-sharing/. Last accessed: January 21, 2020.
  7. Malm D, Nilssen Ø. Alpha-mannosidosis. Orphanet J Rare Dis. 2008;3:21.
  8. Bavisetty S, Grody WW, Yazdani S. Emergence of pediatric rare diseases: Review of present policies and opportunities for improvement. Rare Dis. 2013;1:e23579.